Showing posts with label disabilities. Show all posts
Showing posts with label disabilities. Show all posts

Saturday, June 1, 2013

Support the Crusade!

While there are many good organizations in the world, in my opinion, there are few that are as worthwhile and deserve support as much as the Crusade for Children.

There are the well-known public reasons:
1. They provide services and equipment to help children with special needs.
2. 100% of the funds raised is used for the children - NONE of it goes toward other costs! (do you have any idea how rare this is?)
3. The money raised in the local area is used in that area.

These are all wonderful reasons, and alone, would be enough for me to support the Crusade. But then, there's the personal side of the story, the real reasons I support the Crusade for Children.

We moved to Louisville, Kentucky in mid-June, 1982; parents of a healthy 3 month old baby and plans to attend seminary then return to Tennessee to work in church. Nope, no connection to the then unheard of Crusade for Children at that point.  But fast forward one short year...

My first experience with the Crusade for Children was in 1983.  I kept hearing mention of it on the radio and TV but had no idea what they were talking about - why was this such a big deal? My mind was still reeling from the amazement at my first observation of the Derby Festival and realization that the Derby is more than a 2 minute horse race. When the firemen walked door to door in our neighborhood, I dug out a dollar and gave it to him, still not really sure what it was all about.

In my world, there were bigger concerns... in the first year in Kentucky, our lives were turned upside down. Not long after starting his seminary studies, Keith started experiencing vision problems. By October, he required emergency surgery to repair a detached retina. By January, he wasn't healing well and they decided he needed further surgery.  After surgery, they realized there was nothing to be done to prevent blindness. The same week, I discovered that "the flu" I couldn't seem to shake was morning sickness.

Despite having a teaching certificate, none of the schools would hire me because I was temporary... we'd only be in the state for a few years. (obviously, there wasn't a teaching shortage then as there is now) When I tried to find work at daycare centers, they rejected me because I was over-qualified and would leave as soon as I was offered a teaching position. They refused to consider me even when I promised I'd stay. Keith lost his job as a delivery person the day of the first surgery. We were struggling, and a few times, didn't have money for food. So the dollar I dug out for the fireman was much more substantial than they could possibly imagine.

In July, 1983, our second child was born 6 weeks early and spent some time in the NICU.  I spent my days at home with our 16 month old son (as well as the two boys I babysat) and late at night, I went to the NICU to be with our newborn for a few hours. As I sat there in the low light, I noticed stickers on much of the specialized equipment that read, "This was provided by Crusade for Children funds." I recalled hearing something about it a month earlier, but didn't remember much.

That fall, I learned of a position working for the Jefferson County Public Schools.  A friend told me about it - they were trying something new, using brand new, still being tested, equipment. The plan was to type print materials into a computer and print it out into braille. The blind students in the district were able to get some braille textbooks  (unless they were brand new) but none of their teacher worksheets or tests, in braille. When interviewed, I was told that the position was funded by a grant and therefore wasn't guaranteed to be permanent.  Yes, I got the job and enjoyed creating the braille materials. My salary, as well as the computer and braille printer, were paid for by a grant the district got from the Crusade for Children. The program worked well and later, the district took it on as a permanent part of their program.

A few months later, I learned of a position at the Kentucky School for the Blind working in the Rec Dept. As a teenager, I'd had a desire to work with the blind, but never pursued it after that... indeed, it didn't even come across my radar again until this moment. They asked if I had certification in visual impairment? Since I didn't know such a thing existed, obviously, not.  I soon learned that there were only four schools in the country that offered this certification. One of them is in Louisville.

It was too late for the position I applied for, but soon, I was in the process of applying for admission to the University of Louisville Graduate School. My plan was to get my master's degree in special education, with a concentration in visual impairment. How on earth could I go from worrying about paying for meager groceries to going to Graduate School? Interesting you should ask... I applied for, and was granted, a scholarship from the Crusade for Children! They paid for ALL of my special education classes! This, along with the teaching certificate I already had, allowed me to teach special education.  By taking just one more class on  my own, I was able to turn this into a master's degree.  I continued worked for JCPS producing braille while I took classes at night.

Part of my coursework involved visiting many programs for children with special needs. I spent some time at a school for children with cerebral palsy. They had specialized walkers, wheelchairs, tables and even eating utensils! I saw equipment (and TOYS) modified so they operate the switches and use them. I went to Churchill Park, a school for extremely handicapped students - some were fed with feeding tubes, others couldn't seem to grasp the simplest things - yet their teachers were patiently working with them. There were therapists teaching children to hold a fork, or to speak, or to walk. I attended a program for preschool children with Down's Syndrome and learned the importance of early intervention and the difference it makes. I visited programs for students with severe behavior disorders. These and other places had something in common - you guessed it, used funds paid for by the Crusade for Children.

Once I graduated, I taught at the Kentucky School for the Blind.  There I learned of the many, many ways the Crusade touched lives as my students shared their stories. Many had been born prematurely, and of course used the same equipment my son used. Some of the buses that transported them to school had "Paid for with Crusade for Children funds" written on the back.

Thanks to the Crusade for Children, children born with special needs are not only provided with equipment that helps them survive, but given the materials and teaching they need to thrive. Thousands and thousands of adults are now working in careers and raising families, all because they received services from the Crusade for Children as they were growing up.  The Crusade for Children is celebrating it's 60th year - a milestone that speaks volumes when you consider the many, many lives touched.

Not speaking for others, but you can see the number of times my own life has been affected by the Crusade for Children. Can you imagine the bigger impact this has had on the children with disabilities? I taught at the School for the Blind for 15 years and saw many lives touched by the Crusade. When I later started teaching in public school, I saw even more examples of Crusade funds used for children with special needs - all funds used to help them be the absolute best they can be!

Please... give generously.  Last year, the Crusade awarded grants to almost 200 schools, hospitals, and programs for children with special needs.The goal is $6 million this year - will you help?  For more information about the Crusade for Children, including a link to donate, go to their website.
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Saturday, June 2, 2012

The Crusade for Children

The WHAS Crusade for Children, the largest local telethon in the country, has raised almost $150 Million for children with special needs in our area. 100% of the money raised is used to fund grants. It is a charity near and dear to my heart and I encourage your support.  Last year, over $5 million was donated.

It's the "Crusade for Children" weekend.  If you live in Kentucky or southern Indiana, you've undoubtedly seen the firefighters at the roadblocks collecting money the past few weeks.  I hope you've given generously each time you're stopped. 50% of the money raised for the Crusade is done so by the Fire Departments across the state. They have events throughout the year as well as having volunteers go door-to-door and stand at roadblocks collecting money. 

Other money is raised by community groups, churches, and individuals, as well as donations during the yearly telethon. Throughout the year, there are fish frys, mini-marathons, auctions of homemade quilts, bake sales, and jars for donating your change at stores and restaurants. It's a grassroots effort to help our kids with special needs. Money raised is earmarked for that area and grants are distributed to all areas of the state of Kentucky as well as some of southern Indiana.

My Personal Connection
My first exposure to the Crusade for Children was in 1983 when I was pregnant with Andrew. We'd moved to Kentucky the year before, but after that year's Crusade. While I saw people collecting, I really didn't understand why. I certainly didn't realize the impact of the donations. 

But a month later, Andrew was born prematurely and spent time in the NICU. As I sat in the rocking chair holding him during the night, I noticed little stickers on much of the specialized equipment designated that it'd been provided with Crusade for Children funds. When I took him for follow-up appointments at the neo-natologist, I noticed more equipment, such as the MRI machines with the same labels.

When Andrew was a few months old, I had an opportunity to go back to school to get my Master's Degree in Special Education. When I talked to the people at U of L, I was encouraged to apply for a Crusade Grant. Again, there was that name - I admit, I was getting quite curious. The Crusade for Children offered several scholarships each year to deserving teachers willing to teach special education. I applied and was given a full scholarship. Without it, I couldn't have afforded to go back to school.

My concentration was on teaching the Visually Impaired, but I took classes in many areas of special needs. The classes often included working in the field which gave me hands-on experience with the wonderful things done by the Crusade for Children grants such as physical, occupational, and speech therapy..When I went to the DePaul School, I saw students with cerebral palsy using specialized equipment to help them get around and toys and electronics with adapted dials. I saw a boy learn to ride a special bicycle for the first time in his life and it was priceless. While it was fun for him, it was a part of specialized therapy and training for his muscles.

Another semester, I did some volunteer work with preschoolers with Downs Syndrome. Again, I saw things with the Crusade for Children stickers. At the Churchill Park School, I worked with teens with such severe needs that they were working on feeding themselves, learning to walk, or learning their names. I saw a student using a computer by nodding his head, the only part of his body he could control. The headband he wore allowed him to type sentences, one painstaking letter at a time. They had therapy needs as well as educational needs. Many of these needs were met by the Crusade.

When I started teaching at the Kentucky School for the Blind, I found out that some of the vans used to transport students to our school from all across the state were a result of Crusade grants. The districts were able to provide computers with speech that allowed blind users to use a computer just as their sighted peers did. There were grants used at our school as well.

While still a student, I was offered a position as Braille Transcriber for the Jefferson County Public Schools.  My salary and equipment were funded by a Crusade grant. If it proved successful, the district would then take over funding in future years. New software programs and a braille printer made it possible to produce braille materials more quickly in a practical way for classroom use for individual students. This allowed the visually impaired students in public schools access to the same materials their sighted peers had, whether it be a textbook, student study guides, or tests. Again, I saw the funds from the Crusade for Children directly benefiting the students with special needs.

What is the Money Used For?
As you've noticed, the donated money goes to provide Crusade grants. Currently, there are more needs than funding allows. The grants aren't easy to get and they must document exactly how they benefit the children. The grants are one-time grants for that year only and must be applied for annually. Approximately a third of the requests are funded each year. The hope is that some day, there will be enough money to meet all of the requests. 

ALL of the money donated for the Crusade goes for these grants. Any administrative costs are either volunteer hours or paid for by an endowed trust for that purpose. Materials such as posters, shirts, and office supplies are donated by local businesses. The food used to feed the volunteers collecting money is donated by local restaurants.  The promotion and air time for the yearly telethon is also donated.

How Can I Donate?
I'm glad you asked. When you see a Crusade volunteer at a roadblock, please give generously. Perhaps you'd like to sponsor something during the year to raise money for next year's Crusade. Having a yard sale not only clears out your clutter, but you could donate the proceeds. Please remember the Crusade for Children in your charitable giving.